I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my son with profound special needs, required yet another diaper change – a chore that was becoming increasingly able to grate my very last nerve over the past few weeks as his father recovered from shoulder surgery – a recovery period that did not allow for diaper changes.
I opened the door slightly and held my breath. The third of the day so far. My least favorite job in the whole world.
I did what was necessary – cleaned my big 15-year-old man child, and as I prepared to leave, he reached for my face, met my eyes and sang in his sweet jumbled way,
Oh God you are my God, and I will ever praise you.
Continue reading “A Holy Shift”
Dear mama with normal children,
What’s politically correct you might wonder?
As do I and –
What is normal anyway?
Honestly, I’m not sure because I’m tired.
And I don’t spend my free time on political jargon
And I definitely don’t sleep well
And most of my waking hours I’m caring for someone else
Or finding resources that will hopefully make our life a little bit easier someday.
Someday – a day that feels more and more like a unicorn lately.
You see, I’m a special needs mama to a 15 year old son.
And no, it’s not politically correct to call myself that
Because I am more than just special needs
Or so they say
But am I?
Because a pretty high percentage of my life revolves around my child and what we can or can’t do because of his limitations.
I often see you and your beautiful typical functioning children out and about in the world, and I’m envious.
Yes, I said that out loud.
And I’m not supposed to say those words because I have my miracle baby.
The child the experts said would never live
So there’s always guilt attached
To my envy. Continue reading “See Me Too – A Caregiver’s Plea”
I’ve been a proud resident of rural Tennessee for the past five years, and I’ve gleaned a bit of unconventional wisdom that I wasn’t aware of before moving to the South. Here are the 5 lessons I’ve learned after 5 years of living here. Continue reading “5 Lessons Learned After 5 Years of Living in the South”
A few days ago we told the kids that we had a surprise for them and to pack their bags for some fun!
They were excited – some of them handle surprises better than others (my bios become highly suspicious – like their mother – whatever; it’s character building), whereas, Ryan’s bios become the happiest clan of children in the whole wide world! There’s nothing they like better than a fun time and man, when they envision a good time, they go big.
Continue reading “Our Fun Family Getaway”