See Me Too – A Caregiver’s Plea

 

Dear mama with normal children,

Normal? Typical?

What’s politically correct you might wonder?

As do I and –

What is normal anyway?

Honestly, I’m not sure because I’m tired.

And I don’t spend my free time on political jargon

And I definitely don’t sleep well

And most of my waking hours I’m caring for someone else

Or finding resources that will hopefully make our life a little bit easier someday

Someday – a day that feels more and more like a unicorn lately.

You see, I’m a special needs mama to a 16 year old son.

And no, it’s not politically correct to call myself that

Because I am more than just special needs

Or so they say

But am I?

Because a pretty high percentage of my life revolves around my child and what we can or can’t do because of his limitations.

I often see you and your beautiful typical functioning children out and about in the world, and I’m envious.

Yes, I said that out loud.

And I’m not supposed to say those words because I have my miracle baby.

The child the experts said would never live

So there’s always guilt attached

To my envy. Continue reading “See Me Too – A Caregiver’s Plea”